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What's New?
Skype support group for teenagers

The Alzheimer's Foundation of America is pleased to announce a Skype support group for teenagers impacted by Alzheimer's disease, on Tuesdays from 4 p.m. to 5 p.m. (ET) from February 18 to April 8, 2014. The free, eight-week series will be facilitated by an AFA's licensed social worker and will provide teens with emotional support, caregiving skills and the opportunity to meet other teens who share their experiences. For more information and to register, call 866-232-8484 or email info@alzfdn.org. Space is limited!

Alzheimer's Awareness College Scholarship is quickly approaching!

The deadline for the AFA Teens for Alzheimer's Awareness College Scholarship is quickly approaching! Scholarship awards to deserving college-bound students are: $5,000 to the winner; and $2,500 and $1,000 scholarships to the first and second runners-up, respectively. Additionally, seven $500 scholarships will be awarded for Honorable Mention. The deadline for applications is February 15 of each year. For more information, visit http://www.youngleadersofafa.org/about_new.html or call 866-232-8484.

High School Basketball Classic to Benefit AFA

High school students from Long Island, N.Y. will participate in the 4th Annual Alzheimer’s All-Star Basketball Classic on Sunday, October 20, 2013 to raise awareness of Alzheimer’s disease. The event will be held at Half Hollow Hills West High School in Dix Hills, N.Y. and will feature two basketball games with elite players, celebrity appearances, giveaways and raffles. The Alzheimer’s Foundation of America  will be one of the event’s beneficiaries.

The Alzheimer’s All-Star Basketball Classic was founded by Gordon Thomas, former St. John’s University all-star and NBA draftee, in honor of his father, John Edward Thomas Sr., who had Alzheimer’s disease. For more information, click here.

Summer Camp for Teens Continues in 2013

TIME FOR US, a  camp for teens from 10 to 18 who have a loved one with Alzheimer’s disease or another neurological challenges, will be operating for its fifth summer. Activities include ropes challenge, tower climbing, canoeing, water sports and field sports; and a portion of each day focuses on a healthy brain, utilizing a unique Keeper of Memories program based on nature and nurturing.

The camp is sponsored by Alzheimer’s & Dementia Alliance of Wisconsin and will run from July 14 to 19, 2013 at Lutherdale Camp, Elkhorn, WI. For information, call 608.232.3400 or visit www.forMemory.org.

Teen Advocates for Alzheimer’s Research in Online Contest

Max Wallack, a 16-year old college sophomore and Alzheimer’s advocate, is calling on the Alzheimer’s community to help him raise $10,000 toward Alzheimer’s research via an online contest. The contest recognizes teen champions and is sponsored by Kids Who Give, a national program that celebrates ”the best in today’s youth. ” 

To support Max, all we need to do is to cast your vote online—and you can continue to vote one time a day until February 5, 2013.

Max would use the winnings to support Alzheimer’s research at Boston University’s School of Medicine. He is currently a research intern at the university’s Alzheimer’s Disease Center.

Max , who lives in Natick, MA, is no stranger to Alzheimer’s awareness. As a caregiver to his great-grandmother who had Alzheimer’s disease, Max saw first-han d the impact of the brain disorder on family and the community. In 2008, he founded Puzzles to Remember after noticing the therapeutic effects of puzzles on people with Alzheimer’s disease. Since then, the non-profit organization has collected and distributed more than 18,000 puzzles to facilities worldwide that serve people with Alzheimer’s disease.

You can learn more about Max in th e winter 2010 issue (page 12) of care ADvantage, AFA’s quarterly publication for caregivers of individuals with dementia.

So vote, vote often, and spread the word so we can all root for Max’s cause! 

Caregiving Youth Director Nominated as 2012 CNN Hero

Connie Siskowski, RN, Ph.D., director of the Caregiving Youth Project (CYP), a program of the American Association of Caregiving Youth, Boca Raton, FL has been nominated as a 2012 CNN Hero, a year-long initiative that honors everyday people who are changing the world.

CYP, the first program of its kind in the nation, provides direct services to children who care for ill, disabled or elderly family members. Direct services include skills building classes and support groups in school, recreational outings, and connecting families with resources.

As a former child caregiver herself, Siskowski has a special understanding of the unique challenges these young people face. Click here to view her story.

Family Caregiver Alliance Profiles AFA Teens

The Family Caregiver Alliance recently chose to profile AFA Teens as the key feature on its Web site.

In a question-and-answer format, AFA Teens staff answered questions about the division, the background about its founding, major accomplishments and its impact on the community.

To read the interview, click here.

AFA Teens Wins Award for Innovations in Caregiving

AFA Teens was recently named a recipient of the prestigious Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving Legacy Award.

The Rosalinde and Arthur Gilbert Foundation and the Family Caregiver Alliance are presenting the awards of $20,000 each to the Alzheimer’s Foundation of America and three other nonprofit organizations in recognition of programs that “exemplify outstanding service and innovative strategies in serving individuals with Alzheimer's and their caregivers.” They selected AFA Teens in the category of diverse and multicultural communities.

“Receiving this award reinforces the value of programming for this age group. We are committed to serving this often overlooked population, many of whom are devoted caregivers themselves,” said Eric J. Hall, AFA’s president and chief executive officer.

Fellow recipients of the award are: Songwriting Works Educational Foundation, Port Townsend, WA, Alzheimer’s Association California Southland Chapter, Los Angeles, CA, and Mountain Projects, Inc., Waynesville, NC.

AFA Teens Scholarship Winner Shares Experience at Washington, DC Briefing

On October 6, Katherine Henley of Phoenix, the 2010 AFA Teens for Alzheimer’s Awareness College Scholarship winner, spoke at a briefing held by the USAgainstAlzheimer’s in Washington D.C. Before 75 attendees, the Colorado State University student shared her experience in coping with the loss of her father to young onset Alzheimer’s disease, a rarer form of the disease that affects individuals in their 30s, 40s and 50s. Her father was diagnosed at age 41 and passed away three years later.

USAgainstAlzheimer’s is a new campaign to mobilize Americans to stop Alzheimer’s disease by 2020, and the briefing was held to urge lawmakers to commit additional funding for research as part of a disciplined strategy to meet its goal. In addition to Henley, the speakers were Supreme Court Justice Sandra Day O’Connor (Ret.), Senator Susan Collins (R-ME), Senator Amy Klobuchar (D-MN) and Nobel Prize winner Stan Prusine.

In her heartfelt address, Henley said, “The face of Alzheimer’s disease is changing. It’s becoming more and more prominent in younger families. To most, my family’s experience with Alzheimer’s disease is tragic but novel. Assumptions that Alzheimer’s disease is only affecting older generations is completely wrong. It can and does affect younger generations like my father and my uncle. Something needs to be done with Alzheimer’s research and it needs to be done now, or otherwise stories like mine won’t be so novel anymore.”

To read Henley’s winning essay, click here.

Summer Camp Available to Teens Who Have a Loved One with Dementia

A camp that uniquely caters to children and teens whose parents or grandparents are living with dementia will be open this summer in Wisconsin. The program offers traditional camping activities, as well as the opportunity to become more educated about Alzheimer’s disease and related illnesses.

“Time for Us: Summer Camp for Teens” is designed for children and teens--ages nine to 16—who have a relative with memory loss. It is sponsored by Alzheimer’s & Dementia Alliance of Wisconsin and for Memory, a network of persons affected by early memory challenges.

While the week is filled with activities such as ropes challenge, canoeing and field sports, there will also be educational programs related to Alzheimer’s disease. Campers will learn new coping skills, gain peer support and foster new relationships with teens in similar situations.

In addition, in conjunction with AFA Teens, camp participants will be composing poems, songs, artwork and other creative works to post on the AFA Teens Web site as a means of expressing themselves and encouraging other teens to do the same.

Time for Us will run from August 8-13, 2010 at the Lutherdale Adventure Camp in Elkhorn, WI. Scholarships are available. Click here to download a registration form.    

AFA Teens Names Advisory Board Members... click here 

President Obama Declares November National Alzheimer's Disease Awareness Month...Click here

AFA Teens Advisor Named 2010 Rose Queen

AFA Teens Advisory Board member Natalie Innocenzi of Arcadia, CA was named the 92nd Rose Queen by the Pasadena Tournament of Roses on October 20.

Eric J. Hall, AFA’s president and CEO, extended his warmest congratulations to Natalie.

“Natalie has an enormous heart and community spirit. Her community involvement to further the cause of Alzheimer’s disease has been extremely commendable,” Hall said.

As part of her efforts with AFA Teens, the California teenager led an Alzheimer’s Awareness week at her school, Flintridge Sacred Heart Academy, last winter that included planting forget-me-knot seeds in the school garden and an educational assembly for all her classmates.

“[My grandmother] is someone I have always looked up to. She has given me the strength to hopefully be able to make a change and increase awareness of Alzheimer's,” said Natalie, 16.

She hopes to give back to the Alzheimer’s community even more when she studies occupational or physical therapy with an emphasis in gerontology in college.

Natalie will be crowned by Tournament of Roses Acting President Jeff Throop at a November 4 coronation ceremony at the Pasadena Convention Center.

The Rose Queen and the six new princesses will attend more than 150 events during the rest of the year, leading up to the 2010 Tournament of Roses Parade on January 1 and the 96 th Rose Bowl Game.

The young ladies were selected based upon a combination of qualities, including public speaking ability, poise, academic achievement and community involvement.

“2010 Rose Queen Natalie Innocenzi and our six princesses are perfect ambassadors for the Tournament of Roses, and the city of Pasadena. They are talented, graceful and stellar examples of what it is to be A Cut Above the Rest,” said Throop.

AFA Teens Receives Honorable Mention in National Family Caregiving Awards, sponsored by the National Alliance for Caregiving and MetLife Foundation... click here



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